Perception of quality of life and personal autonomy in children and adolescents with ADHDsystematic review

  1. Vila-Paz, Alba
  2. Santos-del Riego, Sergio Eduardo
  3. García-de la Torre, Pilar
Revista:
Education, Sport, Health and Physical Activity (ESHPA): International Journal

ISSN: 2603-6789

Ano de publicación: 2019

Volume: 3

Número: 1

Páxinas: 118-140

Tipo: Artigo

DIALNET GOOGLE SCHOLAR lock_openDIGIBUG editor

Outras publicacións en: Education, Sport, Health and Physical Activity (ESHPA): International Journal

Resumo

El Trastorno por Déficit de Atención con Hiperactividad (TDAH) comprende un patrón de síntomas complejos y heterogéneos. Tiene un origen neurobiológico y produce alteraciones en las funciones ejecutivas, siendo muy característica la incapacidad para centrar atención en las acciones cotidianas, regular el nivel de actividad e inhibir el comportamiento motriz y/o cognitivo. El trastorno impacta en el desarrollo del menor y provoca una alteración en la percepción de la calidad de vida y en la autonomía personal. El desempeño de las actividades diarias en los distintos niveles de la complejidad que requieren, está obstaculizado por la presencia del TDAH. Existen intervenciones basadas en evidencia para la reducción de los síntomas aunque no se ha encontrado tratamiento que mejore directamente la ejecución de las actividades de la vida diaria ni que incida en el bienestar de los niños con TDAH y de sus familias.

Referencias bibliográficas

  • American Occupational Therapy Association. (2016). Occupational Therapy Practice Framework: Domain and Process. American Journal of Occupational Therapy, 609-639.
  • Bastiaansen, D., Koot, J.M., Ferdinand, R.F., & Verhulst, F.C. (2004). Quality of Life in Children With Psychiatric Disorders: Self-, Parent, and Clinician Report. Journal of the American Academy of Child & Adolescent Psychiatry, 43 (2), 221–230.
  • Becker, A., Roessner, V., Breuer, D., Dopfner, M., & Rothenberger, A. (2011). Relationship between quality of life and psychopathological profile: Data from an observational study in children with ADHD. European Child & Adolescent Psychiatry , S267-75.
  • Blesedell, C. E., Cohn, E.S., Boyt, S.B.A. (2016). Willard & Spackman Terapia Ocupacional (12 ed.). Madrid: Médica Panamericana.
  • Brown, C., & Stoffel, V. (2011). Occupational therapy in mental health: A vision for participation. Philadelphia: F. A. Davis.
  • Brown, R.T., Perwien, A., Faries, D.E., Kratochvil, C.J., & Vaughan, B.S. (2006). Atomoxetine in the management of children with ADHD: effects on quality of life and school functioning. Clinical Pediatrics, 45 (9), 819–827.
  • Colman, W. (1992). Maintaining autonomy: the struggle between occupational therapy and physical medicine. American Journal of Occupational Therapy, 46 (1), 63-70.
  • Early, M.B. (2009). Mental Health Concepts and Techniques for the Occupational Therapy Assistant (4 ed.). Philadelphia: Lippincott Williams & Wilkins.
  • Escobar, R., Soutullo, C. A., Hervas, A., Gastaminza, X., Polavieja, P., & Gilaberte, I. (2005). Worse Quality of Life for Children With Newly Diagnosed Attention-Deficit/Hyperactivity Disorder, Compared With Asthmatic and Healthy Children. American Academy of Pediatrics, 116 (3).
  • Grünwald, J., & Schlarb, A. (2017). Relationship between subtypes and symptoms of ADHD, insomnia, and nightmares in connection with quality of life in children. Neuropsychiatric Disease and Treatment, 13.
  • Hahn-Markowitz, J., Manor, I.,& Maeir, A. (2011). Effectiveness of Cognitive–Functional (Cog–Fun) Intervention With Children With Attention Deficit Hyperactivity Disorder: A Pilot Study. The American journal of occupational therapy, 65 (4), 384-92.
  • Hakkaart-van Roijen, L., Zwirs, B.W.C., Bouwmans, C., Tan, S.S., Schulpen, T.W.J.,Vlasveld, L., & Buitelaar, J.K. (2007). Societal costs and quality of life of children suffering from attention deficient hyperactivity disorder (ADHD). European Child & Adolescent Psychiatry, 16 (5), 316- 26.
  • Kielhofner, G., Forsyth, K., Kramer, J.M., Melton, J., & Bobson, E. (2009). El modelo de la ocupación humana. En C. C. Blesedell, Willard & Spackman. Terapia Ocupacional (Vol. 11ª, págs. 446-461). Madrid: Editorial Médica Panamericana.
  • Klassen, A.F., Miller, A., & Fine, S. (2006). Agreement between parent and child report of quality of life in children with attention‐deficit/hyperactivity disorder. Care, Health & Development, 32 (4), 397– 406.
  • Klassen, A.F., Miller, A., & Fine, S. (2004). Health-related quality of life in children and adolescents who have a diagnosis of attention-deficit/hyperactivity disorder. Pediatrics, 114 (5), e541-7.
  • Kühler, M., & Jelinek, N. (2013). Autonomy and the Self. London: Springer.
  • Maeir, A., Hahn-Markowitz, J., & Manor, I. (2011). Efficacy of an Occupation-based Cognitive Treatment for Children with ADHD: Pilot Study. American Journal of Occupational Therapy, 68, 260-267.
  • Matilde, S.L. (2010). Construction, validity and reliability of a questionnaire in children with ADHD. Revista Latinoamericana de Ciencias Sociales, Niñez y Juventud, Manizales, Doctorado en Ciencias Sociales, Niñez y Juventud del Centro de Estudios Avanzados en Niñez y Juventud de la Universidad de Manizales y el Cinde, vol. 8, núm. 2, pp. 1117 - 1129.
  • Matilde, S.L. (2014). Biopsychosocial perspective of ADHD. Open Journal of Epidemiology 4 (2014) 1- 6.
  • Maskill, L., Tempest, S. (2017). Neuropsychology for Occupational Therapists: Cognition in Occupational Performance (4 ed.). United Kingdom : Wiley.
  • Miranda-Casas, A., Presentación-Herrero, M.J., Colomer-Diago, C., & Roselló, B. (2011). Satisfacción con la vida de niños con trastorno por déficit de atención/hiperactividad: estudio de posibles factores de riesgo y de protección. Revista de Neurología, 52, s119-26. Moruno, M. P., & Talavera, V.M.A. (2012). Terapia Ocupacional en salud mental. Barcelona: Elsevier Masson.
  • Morrison, V., & Bennet, P. (2008). Psicología de la salud. Madrid: Pearson Educación.
  • Muñiz, C., M. & Gasper, D. (2009). Exploring Human Autonomy Effectiveness: Project Logic and its Effects on Individual Autonomy. SSRN Electronic Journal, DOI: https://doi.org/10.2139/ssrn.1434343.
  • Organización Mundial de la Salud. (1998). Manual de instrucciones de la OMS sobre la calidad de vida. Ginebra: Organización Mundial de la Salud.
  • Peasgood, T., Bhardwaj, A., Biggs, K., Brazier, J., Coghill, D., Cooper, C., Daley, D., Val, C., Harpin, V., Hodgkins, P., Nadkarni, A., Setyawan, J., & Sonuga-Barke, J. (2016). The impact of ADHD on the health and well-being of ADHD children and their siblings. European Child & Adolescent Psychiatry, 25 (11), 1217–1231.
  • Pongwilairat, K., Louthrenoo, O., Charnsil, C., & Witoonchart, C. (2005). Quality of Life of Children with Attention-Deficit/Hyper Activity Disorder. Journal of the Medical Association of Thailand, 88 (8), 1062-6.
  • Rajmil, L., Estradaa, M.D., Herdmanb, M., Serra-Suttona, V., Tebe, C., Izaguirred, J., Aldad, J.A., Alonso, J., Rileye, A.W., Forrestf, C.B., & Starfielde, B. (2009). Parent-child agreement in the health related quality of life (HRQOL) of children with attention-deficit/hyperactivity disorder (ADHD): A longitudinal study. Anales de pediatría, 70 (6), 553-561.
  • Remschmidt, H., & Mattejat, F. (2010). The quality of life of children and adolescents with ADHD undergoing outpatient psychiatric treatment: simple disorders of activity and attention and hyperkinetic conduct disorders in comparison with each other and with other diagnostic groups. Attention Deficit and Hyperactivity Disorders, 2 (4), 161-70.
  • Rosenberg, L., Maeir, A., Yochman, A., Dahan, I., & Hirsch, I. (2015). Effectiveness of a Cognitive– Functional Group Intervention Among Preschoolers With Attention Deficit Hyperactivity Disorder: A Pilot Study. American Journal of Occupational Therapy, 69 (3).
  • Russell, C., Fitzgerald, M.H., Williamson, P., Manor, D., Whybrow, S. (2002). Independence as a practice issue in occupational therapy: the safety clause. American Journal of Occupational Therapy, 56 (4), 369-79.
  • Sánchez, R.O., Polonio, L.B., Pellegrini, S.M. (2013). Terapia Ocupacional en Salud Mental Teoría y Técnicas para la Autonomía Personal. Madrid: Panamericana.
  • Schneider, M., & Robin, A. (1990). La técnica de la tortuga. Un método para el autocontrol de la conducta impulsiva. En T. Bonet, Problemas psicológicos en la infancia. Valencia : Promolibro-CINTECO.
  • Scheinholtz, M. (2010). Occupational therapy in mental health: Considerations for advanced practice. Bethesda, MD: AOTA Press.2w2222. Bethesda: AOTA Press.
  • Thornton, A., Licari, M., Reid, S., Armstrong, J., Fallows, R., & Elliott, C. (2006). Cognitive Orientation to (Daily) Occupational Performance intervention leads to improvements in impairments, activity and participation in children with Developmental Coordination Disorder. Disability and Rehabilitation, 38 (10).
  • Upton, P., Maddocks, A., Eiser, C., Barnes, P.M., & Williams, J. (2005). Development of a measure of the health-related quality of life of children in public care. Health Qual Life Outcomes, 31 (4), 409- 415.
  • Urzúa, M.A., & Caqueo-Urízar, A. (2012). Calidad de vida: Una revisión teórica del concepto. Terapia psicológica, 30 (1), 61-71.
  • van der Kolk, A., Bouwmans, C.A., Schawo, S.J., Buitelaar, J.K., van Agthoven, M., & Hakkaart-van Roijen, L. (2014). Association between quality of life and treatment response in children with attention Deficit Hyperactivity Disorder and their parents. The Journal of Mental Health Policy and Economics, 17 (3).
  • Wehmeier, P., Schacht, A., Escobar, R., Savill, N., & Harpin, V. (2010). Differences between children and adolescents in treatment response to atomoxetine and the correlation between health-related quality of life and Attention Deficit/Hyperactivity Disorder core symptoms: Meta-analysis of five atomoxetine trials. Child and Adolescent Psychiatry and Mental Health, 4 (30).
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