Esperando un diagnósticoexperiencias de padres de niños con sospecha de discapacidad

  1. Samanta López Paz
  2. Silvia López- Larrosa 1
  3. Manuel Peralbo 1
  1. 1 Universidade da Coruña, España
Journal:
Revista de estudios e investigación en psicología y educación

ISSN: 2386-7418

Year of publication: 2015

Issue Title: XIII Congreso Internacional G-P de Psicopedagogía. Área 5: FAMILIA, ESCUELA Y COMUNIDAD

Issue: 5

Pages: 108-111

Type: Article

DOI: 10.17979/REIPE.2015.0.05.344 DIALNET GOOGLE SCHOLAR lock_openOpen access editor

More publications in: Revista de estudios e investigación en psicología y educación

Abstract

Getting a diagnosis of a disability or a developmental delay may happen in different moments and may expand in time. During the pre-diagnosis period, families experience frustration as they do not know what happens and what to do. Early attention services are a resource to families. In order to know how families live these wait- times,12 parents were studied. Results show that the length of the wait-time and the relationships developed with the professionals are core variables to face this family situation.

Bibliographic References

  • Botana, I. & Peralbo, M. (2014). Familia, estrés y atención temprana. Revista de Estudios e Investigación en Psicología y Educación, 1 (1), 55-63. http://dx.doi.org/10.17979/2386-7418.reipe.20 14v1i1.23.55
  • Dixon-Woods, M., Findlay, M., Young, B., Cox, H. & Heney, D. (2001). Parents’ accounts of obtaining a diagnosis of childhood cancer. The Lancet, 357, 670-674. http://dx.doi.org/10.1016/S0140-6736(00)04130-1
  • Federación Estatal de Asociaciones de Profesionales de la Atención Temprana (G.A.T.) (2013). La primera noticia. Estudio sobre los procedimientos profesionales, las vivencias y las necesidades de los padres cuando se les informa de que su hijo tiene una discapacidad o un trastorno del desarrollo. Madrid: Real Patronato sobre Discapacidad.
  • Finnvold, J. E. (2009). Childhood asthma: Regional and social inequalities in parents’ perceptions of the diagnostic process in Norway. Norsk Geografisk TidsskriftNorwegian Journal of Geography, 63, 166-174. http://dx.doi.org/10.1080/00291950903238982
  • Graungaard, A. H., & Skov, L. (2007). Why do we need a diagnosis? A qualitative study of parents' experiences, coping and needs, when the newborn child is severely disabled. Child: Care, Health and Development, 33(3), 296-307. http://dx.doi.org/10.1111/j.1365-2214.2006.00666.x
  • Grupo de Atención Temprana (G.A.T.) (2000). Libro blanco de la Atención Temprana. Madrid: Real Patronato de Prevención y de Atención a Personas con Minusvalía.
  • Knafl, K., Ayres, L., Gallo, A., Zoeller, H. & Breitmayer, B. (1995). Learning from stories: parents’ accounts of the pathway to diagnosis. Pediatric Nursing, 21 (5), 411-415.
  • Lundeby, H. & T ⊘ ssebro, J. (2008). Exploring the experiences of “not being listened to” from the perspective of parents with disabled children. Scandinavian Journal of Disability Research, 10 (4), 258-274. http://dx.doi.org/10.1080/15017410802469700
  • Mitchell, C., & Holdt, N. (2014). The search for a timely diagnosis: Parents’ experiences of their child being diagnosed with an autistic spectrum disorder. Journal of Child and Adolescent Mental Health, 26(1), 49-62. http://dx.doi.org/10.2989/17280583.2013.849606
  • Turnbull, A. P., Summers, J. A. & Turnbull, R. (2007). Family supports and services in early intervention: a bold vision. Journal of Early Intervention, 29 (3), 187-206. http://dx.doi.org/10.1177/105381510702900301