Afrontamiento, estrés parental y calidad de vida de los cuidadores principales de personas TEA
- Durán, Montserrat 1
- García-Fernández, Manuel 1
- Fernández, Juan Carlos 1
- Sanjurjo, Beatriz 2
- 1 Grupo de Investigación en Psicología del Desarrollo y del Aprendizaje Escolar (GIPDAE) Universidade da Coruña
- 2 Centro Específico de Autismo de Elviña (A Coruña) A Coruña
ISSN: 2386-7418
Year of publication: 2016
Volume: 3
Issue: 1
Pages: 60-68
Type: Article
More publications in: Revista de estudios e investigación en psicología y educación
Abstract
The aim of this study was to analyze the quality of life of primary caregivers of people with ASD. 50 caregivers of people with ASD aged between 2 and 35 years participated in this study. Besides the quality of life, coping strategies and parental stress were also evaluated. The results showed that (1) parental stress, coping strategies and quality of life were not significantly associated with the developmental stage of the person with ASD; (2) the quality of life in the psychological, social and environmental domains is worse in caregivers with levels of parental stress clinically significant; and (3) the quality of life in the psychological domain is better among those using more adaptive coping strategies, such as social support or positive reappraisal. On the contrary, the use of coping strategies such as aggressive reaction, avoidance or emotional difficulties are associated with a poorer quality of life in the psychological, social and environmental domains.
Bibliographic References
- Abbeduto, L., Seltzer, M. M., Shattuck, P., Krauss, M. W., Orsmond, G. y Murphy, M. M. (2004). Psychological well-being and coping in mothers of youths with autism, down syndrome, or fragile X syndrome. American Journal on Mental Retardation, 109(3), 237-254. http://dx.doi.org/10.1352/0895-8017(2004)1092.0.CO;2
- Abidin, R. R. (1983). The Parenting Stress Index. Charlottesville, VA: Pediatric Psychology Press.
- Allik, H., Larsson, J. y Smedje, H. (2006). Sleep patterns of school-age children with asperger syndrome or high-functioning autism. Journal of Autism and Develop-mental Disorders, 36(5), 585-595. http://dx.doi.org/10.1007/s10803-006-0099-9
- Cabanillas, P. P., Sánchez, E. S., & Zaballos, L. M. (2006). Estrés en madres de personas con trastornos del espectro autista. Psicothema, 18(3), 342-347.
- Cappe, E., Wolff, M., Bobet, R. y Adrien, J. -. (2011). Quality of life: A key variable to consider in the evaluation of adjustment in parents of children with autism spectrum disorders and in the development of relevant support and assistance programmes. Quality of Life Research, 20(8), 1279-1294.
- Cappe, É, Bobet, R. y Adrien, J. (2009). Qualité de vie et processus d'adaptation des familles d'un enfant ayant un trouble autistique ou un syndrome d'asperger. La Psychiatrie De L'Enfant, 52(1), 201-246. http://dx.doi.org/10.3917/psye.521.0201
- Carrobles, J. A., Remor, E. y Rodríguez-Alzamora, L. (2003). Afrontamiento, apoyo social percibido y distrés emocional en pacientes con infección por VIH. / relationshiop of coping and perceived social support to emotional distress in people living with HIV. Psicothema, 15(3), 420-426.
- Chorot, P. y Sandín, B. (1993). Escala de Estrategias de Coping Revisado (EEC-R). Madrid: UNED.
- Dabrowska, A. y Pisula, E. (2010). Parenting stress and coping styles in mothers and fathers of pre-school children with autism and Down syndrome. Journal of Intellectual Disability Research, 54(3), 266-280.
- Dale, E., Jahoda, A., y Knott, F. (2006) Mothers’ attributions following their child’s diagnosis of autistic spectrum disorder. Exploring links with maternal levels of stress, depression and expectations about their child’s future. Autism, 10(5), 463-479.
- Essex, E. L., Seltzer, M. M. y Krauss, M. W. (1999). Differences in coping effectiveness and well-being among aging mothers and fathers of adults with mental retardation. American Journal on Mental Retardation, 104(6), 545-563. http://dx.doi.org/10.1352/0895-8017 (1999)1042.0.CO;2
- Estes, A., Munson, J., Dawson, G., Koehler, E., Zhou, X. y Abbott, R. (2009). Parenting stress and psychological functioning among mothers of preschool children with autism and developmental delay. Autism: The International Journal of Research and Practice, 13(4), 375-387.
- Griswold, G. A., Evans, S., Spielman, L. y Fishman, B. (2005). Coping strategies of HIV patients with peripheral neuropathy. AIDS Care, 17(6), 711-720. http://dx.doi.org/10.1080/09540120412331336715
- Hastings, R. P., Kovshoff, H., Brown, T., Ward, N. J., Espinosa, F. D. y Remington, B. (2005). Coping strategies in mothers and fathers of preschool and school-age children with autism. Autism, 9(4), 377-391. http://dx.doi.org/10.1177/1362361305056078
- Hastings, R., Kovshoff, H., Ward, N., Espinosa, F., Brown, T., y Remington, B. (2005). Systems analysis of stress and positive perceptions in mothers and fathers of pre-school children with autism. Journal of Autism and Development Disorders. 35(5), 635-644.
- Herring, S., Gray, K., Taffe, J., Tonge, B., Sweeney, D. y Einfeld, S. (2006). Behaviour and emotional problems in toddlers with pervasive developmental disorders and developmental delay: Associations with parental mental health and family functioning. Journal of Intellectual Disability Research: JIDR, 50, 874-882.
- Lazarus, R. S. y Folkman, S. (Eds.). (1986). Estrés y procesos cognitivos. Barcelona: Martínez Roca.
- Lee, L., Harrington, R. A., Louie, B. B. y Newschaffer, C. J. (2008). Children with autism: Quality of life and parental concerns. Journal of Autism and Developmental Disorders, 38(6), 1147-1160. http://dx.doi.org/10.1007/s10803-007-0491-0
- Londoño, N. H., Henao-López, G. C., Puerta, I. C., Posada, S., Arango, D., & Aguirre-Acevedo, D. C. (2006). Propiedades psicométricas y validación de la escala de estrategias de coping modificada (EEC-M) en una muestra colombiana. Universitas Psychologica, 5(2), 327-350.
- Lucas Carrasco, R. (1998). Versión española del WHOQOL. Madrid: Ergón.
- Lyons, A., Leon, S., Roecker Phelps, C & Dunleav, A. (2010). The impact of child symptom severity on stress among parents of children with ASD: The Moderating Role of Coping Style. Journal of Child and Family Studies, 19, 516- 524.
- Manning, M. M., Wainwright, L. y Bennett, J. (2011). The double ABCX model of adaptation in racially diverse families with a school-age child with autism. Journal of Autism and Developmental Disorders, 41(3), 320-331.
- Mugno, D., Ruta, L., D'Arrigo, V. G. y Mazzone, L. (2007). Impairment of quality of life in parents of children and adolescents with pervasive developmental disorder. Health and Quality of Life Outcomes, 5, 22-22.
- Oizumi, J. J. (1997). Assessing maternal functioning in families of children with autism Available from PsycINFO. (AAM9638492; 1997-95002-259).
- Osborne, L. y Reed, P. (2009). The relationship between parenting stress and behavior problems of children with autistic spectrum disorders. Exceptional Children, 76(1), 54-73.
- Pakenham, K. I., Samios, C. y Sofronoff, K. (2005). Adjustment in mothers of children with asperger syndrome. an application of the double ABCX model of family adjustment. Autism, 9(2), 191-212. http://dx.doi.org/10.1177/1362361305049033
- Pisula, E. y Kossakowsk, Z. (2010) Sense of Coherence and Coping with Stress Among Mothers and Fathers of Children with Autism. Journal of Autism and Developmental Disorders, 40, 1485-1494.
- Pottie, C. G. y Ingram, K. M. (2008). Daily stress, coping, and well-being in parents of children with autism: A multilevel modeling approach. Journal of Family Psychology, 22(6), 855-864. http://dx.doi.org/10.1037/a0013604
- Schalock, R. L. (2004). The concept of quality of life: What we know and do not know. Journal of Intellectual Disability Research, 48(3), 203-216.
- Seltzer, M. M., Krauss, M. W., Walsh, P. y Conliffe, C. (1995). Cross-national comparisons of ageing mothers of adults with intellectual disabilities. Journal of Intellectual Disability Research, 39(5), 408-418.
- Siman-Tov, A. y Kaniel, S. (2011). Stress and personal resource as predictors of the adjustment of parents to autistic children: A multivariate model. Journal of Autism and Developmental Disorders, 41(7), 879-890.
- Simarro-Vázquez, L. (2013). Calidad de vida y educación en personas con autismo. Madrid: Síntesis.
- Smith, L. E., Seltzer, M. M., Tager-Flusberg, H., Greenberg, J. S. y Carter, A. S. (2008). A comparative analysis of well-being and coping among mothers of toddlers and mothers of adolescents with ASD. Journal of Autism and Developmental Disorders, 38(5), 876-889. http://dx.doi.org/10.1007/s10803-007-0461-6
- Solís, M. L. y Abidin, R. R. (1991). The spanish version parenting stress index: A psychometric study. Journal of Clinical Child Psychology, 20(4), 372-378.
- Wahl, A., Hanestad, B. R., Wiklund, I. y Moum, T. (1999). Coping and quality of life in patients with psoriasis. Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care & Rehabilitation, 8(5), 427-433. http://dx.doi.org/10.1023/A:1008944108101
- WHOQOL Group. (1995). The World Health Organization quality of life assessment (WHOQOL): Position paper from the World Health Organization. Social Science & Medicine, 41(10), 1403-1409. http://dx.doi.org/10.1016/0277-9536(95)00112-K